How Policy and Funding Decisions Impact the Sickle Cell Community
Many of the challenges faced by people living with sickle cell disease extend far beyond the doctor’s office. Policy decisions—often made far…
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Advocating for Yourself During a Sickle Cell Pain Crisis
A sickle cell pain crisis can be frightening, exhausting, and unpredictable. In those moments, self-advocacy can feel impossible—but it can also make…
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Caring for Mental Health While Living with Sickle Cell Disease
Living with sickle cell disease is not just a physical challenge—it’s an emotional one, too. Chronic pain, frequent hospitalizations, and uncertainty about…
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Navigating the Healthcare System as a Sickle Cell Patient
For many people living with sickle cell disease, navigating the healthcare system can feel overwhelming. Between managing chronic pain, scheduling specialist appointments,…
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Why Sickle Cell Advocacy Still Matters Today
Sickle cell disease (SCD) is one of the most common genetic blood disorders in the United States—yet it remains widely misunderstood, underfunded,…
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The Role of Community in Sickle Cell Advocacy
Sickle cell disease doesn’t just affect individuals—it affects families, neighborhoods, and entire communities. That’s why community-based advocacy is one of the most…
